For those wishing to perform their own analyses, anonymous patient-level datasets can be provided for ADEPT approved projects. The OPC data team will work with approved applicants to define the data specification/requirements.
All submissions for data should be made via the Data Request Form.
You will need to include the following in all data submissions:
- Study Name
- Researcher/Point of Contact
- Data Source
- Data Delivery Date
- Funding Source
- ADEPT Approval number (if available)
- ENCEPP registration (if available)
- REC Reference (if applicable)
- Uploading supporting documents: Study Protocol, Data Specification (Cohort Criteria & Read Codes) and Regulatory Approvals (ADEPT. REC etc)
Studies requiring use of OPCRD will also require registration on recognised study databases such as the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP).
Before sharing the data, the customer will be asked to enter into a Data Sharing & Use Agreement and the payment of License Fees.
The OPC data team will then process your request and, once it is done, provide you with detailed guidance on the process of accessing the licensed data. Datasets can be provided within 3 weeks of request.
All the licensed data will be accessible through a secure VPN access to the dedicated SQL database server.
More information on the technical aspects of data provision is available upon request.